I am not going to post much tonight because I am emotionally drained. I hit the wall today, the ugly cry came out and I thought they would need to call the game warden to come and sedate me. Purple eyeliner didn’t stand a chance. It was bad.
Today was just a lull. Slow and steady. But that whole “riding the wave” business is for the birds. Tyler made progress, but we just couldn’t see it. Lots of fluid gone but they are really keeping him sedated so not much movement. And he is still at 40% on the respirator and has been for almost 24 hours. Some other knobs on the ECMO went down, but I am too tired to remember which. But I know its a good sign, This whole thing is just really, really, really, hard. And it’s so hard not to think one little thing is a setback, and to remind yourself to look at the bigger picture. The little victories seem huge but unfortunately, so do the minor blips. Trying to keep perspective. It’s just hard.
Godwin: We got a picture of your banner and you couldn’t have done a better job! Everything ya’ll are doing for him is just such a blessing and so kind. I just wanted to make sure that you knew how it encourages us and helps keep us strong. We have started hanging pictures and cards up of Tyler and the banner picture is going to be included. Thank you all from the bottom of our hearts. The game may not have gone in our favor, but the war is not over. Heads held high and we are supporting you here in Wilmington.
I am going to bed.
Keep those good thoughts, prayers, and good vibes coming,