Can you tell I am hungry? Remembering dollar tacos with my gal pals from my old job, seems like so long ago. I think things caught up with me this morning because I could not stop crying. I would think of Tyler and the tears would flow for a few minutes and I would try like crazy to pull myself together. Then I would walk down the hall and see a baby and start crying all over again. The lady at the cafeteria handed me my breakfast and I managed to get the “thank” part out before I started crying again! Security and the nice people in the lab coats assure me they will take take these pretty ribbons off my wrists and ankles soon. So that’s pretty exciting.
After some gentle coaxing from Trey I went back to bed for some much needed sleep. What a world of difference when I woke up! I managed to not only to put on the purple eyeliner but managed some eyeshadow AND mascara. (Lady’s you know this is a big deal). On the way back to see Tyler I passed 2 babies without incident or damage to my eye war paint, so things are looking up. I am hoping to get over this hump where he is better stabilized. Then I think I will be able to relax a bit and get on some sort of schedule and where I won’t constantly be on edge and worrying. We will get there for sure!
So, we had a little dip last night and had to bring the respirator back up to 100%. They did a chest x-ray last night and the nurse said that sometimes the smallest things will result in a little setback. Right now he is in such rough shape that what we consider minor small things are actually huge things to him. But the good news from that is his lungs continue to improve and have gotten “better” (per the doctor) since yesterday’s x-ray. Woo Hoo! And I am not sure if I stated already, but his heart doing really well. And they are working on those kidneys. So, bring on the pee! 🙂 This whole process is such a balancing act. Take care of one problem, and 2 more problems pop up due to the treatment of the first problem. Then to treat those problems, you have to look at the bigger picture and figure out how your treatment is going to affect all the other issues. It is a very intricate dance that his entire medical team has to consonantly navigate and collaborate. It really is a eye opening thing to witness, Right now he is extremely swollen and it looks so very painful 🙁 There is so much fluid he is retaining and they are working on getting it out very slowly so it is not hard on his body, plus they have to keep a certain amount of fluid for the ECMO machine. See? There’s that delicate dance. Now I now why Alex Rose sings about “Patience” “Said woman take it slow, and it’ll work itself out fine all we need is just a little patience” It has been a little more than 24 hours since they started the dialysis machine at a level of 120. Because he is stable and tolerating it well, they just bumped it up to 130. The goal is 150. Possibly higher, but definitely 150. I am also happy to report that they were able to bring his respirator down to 70 throughout the day. Remember we had to bring that back up to 100 last night. And while we were at lunch he did wake up a little and the nurse said that he was making “conscious” moves. I don’t believe that was a Sedation Vacation, but a voluntary wake up. But she had to dose him back up again so he didn’t get further agitated.
I am also happy and proud to report that Schulyer has joined the football team and is ready to kick some tail on the Gridiron. That’s a football term right? Well at any rate, GO EAGLES! Tyler is rooting for you guys! Does anyone want to take over duties of the “Wesley” head? Tyler has it in his closet and we can get it to somebody to “pass the torch”. Also I am happy to report that Emily, my wonderful and beautiful daughter made dinner for Trey’s parents and cooked bacon and chicken all by herself for the first time! I am sad to report she is addicted to Pinterest now like me. 🙂
Until next time, keep those prayers and good thoughts comming
Thumbs up! (still in the loop)