Monday Monday,,,, Da Da

So, we had what the doctor called a “half step” back. Tyler is having some problems with his kidneys and is being put on dialysis to filter his blood of fluid. At first we were concerned he would have to go back into surgery for ports to be inserted but soon realized that he already has the correct “equipment” installed. Sort of like computer drivers. 🙂 The tubes and lines already in his neck will work just fine as I understand. That was a huge relief to us because his chest and neck area area on his left side is pretty damaged right now. Remember I talked a little about his “tie dye” chest? Well that area around his chest in neck has begun to blister and the skin is paper thin. They think due to all the meds they had to push into him in such a short time. It will heal over time, but we are glad that that area can be left alone for a little while. Right now they calculated that Tyler is holding approximately 40 cans of fluid in his body. What a hoarder right? The doctors are pretty confident he will have no long term kidney damage. AND it’s not uncommon for the dialysis machine to be needed. Nor will he need it long. Just an aid in his recovery.

This morning on our way to the cafeteria we rode the elevator with an older man who was pushing a wheelchair with a box in it. He said he had just driven in from Nashville to deliver some medication for a patient. Being here has really opened my eyes to alot of behind the scenes events we take for granted. I started thinking about this man driving overnight from Nashville and I gave him a quick big hug and said “thank you for what you do.” We parted ways and I started my hunt for Cheerios because at the ripe old age of (cough, cough) I still love Cheerios. Without milk. When we got back to Tyler the nurse began giving us an update and said that his medicine had just arrived from Nashville and was being given to him. Trey and I both looked at each other in complete astonishment! The man we had JUST seen in the elevator about an hour prior! We believe that was the very man and that large white box we saw in the wheelchair was actually our son’s medication. Isn’t that crazy wonderful?

We also found out today that the surgeon who actually performed the ECMO surgery actually graduated from UVA (Go HOOS!) and his parents actually live pretty close to us? How that for a coincidence? You see, those prayers are putting people exactly where they need to be.

Trey is sitting beside Tyler right now holding Tyler’s hand and I am looking over there and see no less than six different computer monitors behind him. And on his left side there are three machines. One that looks like a large college refrigerator that is hooked to the ECMO machine, the actual ECMO machine itself, and the dialysis machine which is now hooked up and doing its job. I am not counting the IV drips but there are so many things hooked up to this kid. Things that will bing, bong, and, buzz but the nurses are right on top of everything.

They just moved Tyler to a new bed which one of his doctors called the “Cadillac”. I kid you not when I say this bed has a touch computer screen on the side of it. Not only does it have WIFI but will help prevent any bedsores and also fix the issue we had of his feet touching the foot of the bed. He has a corner room with two windows which I call the “Corner Office” So the kid is ballin’ in his Cadi in his corner office. Right now his respiration machine is at 60% down from 100% which is very good. They want him to be around 40% before they will start backing off the ECMO. So we are moving in a positive direction. I continue to be very encouraged and hopeful.

I wanted to say also of how proud I am of Emily, Tyler’s sister. She has really stepped up around the house, cleaning, doing laundry, taking care of our 2 cats, 2 dogs, and 2 fish. I am so proud of that girl it is unreal. I am truly blessed to have such great kids. On top of almost loosing her big brother she is starting a new high school next week (for visual arts) that is across town and won’t be around too many familiar faces. She is currently back at our house with Trey’s parents and Trey is probably going to come home on Saturday or Sunday before Emily starts school so they can get a routine down and just get back to some normalcy. Thank you. Those two words don’t seem like nearly enough to express the gratitude and love from family, friends, community, strangers, and the team working with Tyler.

I will ask you to continue those prayers and thoughts because they are working (remember elevator man) they are showing up in all kinds of places.

Thumbs up! (we didn’t get to work on that today. New dialysis machine and moving to a new bed are hard on a body. But that continues to be our short term goal.

Love,

Team Tyler

19 thoughts on “Monday Monday,,,, Da Da

  1. Juanita Flener Hamlin - August 31, 2015

    I wore purple eyeliner today, a fat crayon of it and showed to Diana FuzzyW and Chris Patterson so you would KNOW I did it. We love you.

  2. Catherine Bumarch - August 31, 2015

    Wow that is crazy wonderful about the man in the elevator. When things like that happen.. wow. Still praying and saying the rosary for him!

  3. Kristen Friedman Anglin - August 31, 2015

    So glad he is overall doing good/better! You crack me up with your jokes and sense of humor…and that is why we are friends. I will continue with the prayers.

  4. Florence - August 31, 2015

    Dr. Tuten and I are keeping you in our thoughts and prayers! I know you guys are going through a lot right now. Let me know if we can do anything. You know how to get a hold of me! Hugs to Emily too!

  5. Natalie Reddell - August 31, 2015

    Your amazing children are a direct reflection of their amazing parents. I miss you and your purple eyeliner!
    Praying constantly. God is good. Excited about Tyler’s fancy new digs! Hugs and Love. #TeamTyler

  6. MaryAnn Vendt - August 31, 2015

    Michelle,
    I’ve met you once or twice over the years through your mom. We work together and she was my daughter’s first teacher many many years ago ( she’ll be 21 next month) So needless to say, she has a very special place in our hearts. I got to see Emily today when she came with your mom to work for a bit. She was very helpful!!! I can’t believe how grown she is!!!! Please know prayers continue for Tyler and your entire family. I can only imagine how you feel. We’re all pulling for him!!!! Can’t wait to hear when he gives you that thumbs up!!??
    Sincerely,
    MaryAnn Vendt

  7. Donna Tyler - August 31, 2015

    Y’all are constantly in our thougts and prayers!! Tyler is such a fighter, he’s going to be giving that thumbs up soon!!

  8. Yolanda Bumarch - August 31, 2015

    Michelle and Trey. Tony and I were very sorry to hear about Tyler. Once we heard we asked for prayers from family, friends and co-workers. Tyler has people praying for him in PA, NJ and VA. You and your family are also in our prayers. Keep posting, use the purple mascara, and know that Tyler will be back with you in VA soon. Hang in there.

  9. Barbara Acuna - August 31, 2015

    Reading your updates are very encouraging, indeed. Tyler is a fighter. He’s not going to lose this one. He has a World Series he’s banking on in 2 years! 🙂 Will continue my prayers for him. Prayers also for you, Trey, and Emily.

  10. Joan Ozolins - August 31, 2015

    I think of you guys often – but not too much- or I cry….sorry. My heart is there with you and I hope that good fortune continues to guide Tyler’s path on his road to recovery

  11. Heather Szoch - August 31, 2015

    Such great news! How wonderful to have possibly met the man that brought meds for Tyler, and in the elevator of all places. Down to 60% already?!? Go Tyler!! Keep fighting your way back to your family and friends! You are all in our prayers.

  12. jimmy mcconnell - August 31, 2015

    michelle and trey , it is not uncommon for someone who was a near drowning on ecmo to need dialysis or cvvh. i know this is terrifying but it sounds like the team taking care of tyler is doing a great job. unfortunately we see near drowning several times a year. i am very encouraged by the reports you have posted about tyler waking up. i am very encouraged and excited that he will make a full recovery. if at any time you would like to talk about anything regarding the medical stuff or anything else please dont hesitate to contact us. jimmy and catie mcconnell

  13. Cindy Buckels - August 31, 2015

    Not just amazing things going on. I am seeing first hand what wonderful parents you are. Not that I didn’t already know that but what you are doing with such grace is awe inspiring. Love you

  14. Caroline Tonra - September 1, 2015

    We have been thinking of you, praying for you, and CHEERING for Tyler from the moment we heard your
    unimaginable news. Today, I have read your posts and have both laughed and cried while I picture Tyler’s
    happy go lucky smile and marvel at your strength! Tyler is a fighter, albeit a gentle one. He proved that during the crazy year that was first grade when he and Parker first met! When Parker changed schools the next year, and especially when you moved away, I never imagined that we would stay in touch because we Tonras are not very good at that. You Wentzs excel at the loyalty and friendship thing, so it is no surprise to see that Tyler Nation is so strong. Please know that we are here for you. Love, Caroline, Wally, Andrew, and Parker

  15. Robert Reddell - September 1, 2015

    Prayers from Florida.

  16. Kim Wentz - September 1, 2015

    Continuing to think and pray. Very willing to make a trip if you need anything.

  17. Carrie Ludovico - September 1, 2015

    Dear Wentz family: We’re part of a large group of fortunate TLL boys who have had Tyler as a coach – our son David was on the AL Invitational team. Both of our boys took notice of Tyler’s attitude, work ethic and general all-around great humor, and admire him greatly. We are covering your family with prayers during this difficult time, and look forward to seeing you all back out on the ball field soon.

  18. Brian Hess - September 1, 2015

    I was lucky enough to have Tyler as my assistant for 2 different teams this past season. He is an unbelievable young man that all of our boys can look up to. Tyler is a fighter and he has an amazing heart. I am so happy to see so many people supporting Tyler and his family because they would all be there for everyone of us. Michelle and trey are also heros in this story because they gave Tyler the love to fight through this. They are there for everything he does. Trey coaches Tyler’s baseball team and Michelle was my scorekeeper so she could be there to watch Tyler coach. You guys are so involved and I believe the love you have given Tyler as given him the strength and want to fight. Myself and everyone else that have gotten to know Tyler are all better people because of him. I look forward to the day I can walk back on the field with Tyler coaching first with me on 3rd. Michelle tell him all my daughter Kallee talks about is Tyler giving her piggy back rides and flipping her around and she expects it again soon. Lol. Thank you guys for all your updates and it sounds like all of our prayers are really helping. Can’t wait to see you all back in Va

  19. Jimmy Ray - September 1, 2015

    Tyler is a fighter. And, he is one of the finest young men we have been fortunate enough to know. We have watched him compete, help out where needed, umpire, and coach. In all those endeavors, he has always thought first and foremost about his teammates, and the kids he has helped.
    He has much more good works to accomplish, and there are many more young folks that will benefit from his knowledge and tireless contributions. I cannot wait to see him out there again at TLL. And you need to let him know, that when we do see him, we are gonna hug his neck for a while. He will just have to get use to that.

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