Sunday

I started this email around 3 and was almost done then POOF! I lost it.

Most of you have already seen Trey’s earlier post about seeing Tyler open his eyes and look at him. What a great start to the day!

We also got the opportunity to meet Schulyer’s grandparents and Aunt. As you remember after Schulyer rescued, Tyler out of the water, it was Popi and another person who performed CPR. What a great family! If they will have us we would like to consider them part of our family as Tyler’s “Bro-Grandparents”. We eat out on Christmas Eve, so pencil us in. 🙂 ha ha. In all seriousness, they were where God needed them to be and he gave them the strength, courage; and knowledge to do what they did that day. Please say a prayer that they find peace and comfort because I am sure it is emotionally taxing.

To everyone on Bald Head Island: to those who directly helped Tyler, to those who assisted with the coordination of getting the Med Flight, to those of you that helped Schuyler’s family and those who have and continue to pray for Tyler. We are so thankful and grateful. I hope that one day in the near future my family will be able to thank you properly in person. Does anyone know who else performed CPR? I would love to find out. Feel free to pass this Caring Bridge site out to anyone who wants it and also keep those prayers coming they are really working. So, we had another “Sedation Vacation” this afternoon. Want to know what its like? The doctors, nurses, and respiratory therapist gather round and someone rolls out a Margarita machine. I grab my purple eyeliner and awayyyyy we go! You can join the party but you must have purple eyeliner, wash your hands, and be able to rock a fancy smancy paper thin yellow cloth gown. It’s all very VIP.

In reality what happens is the nurses back off the sedation and watch for signs of movement. They want to know how long it is taking for his body to respond and how he reacts. Today around lunch he opened his eyes a couple of times and looked at me. And what was awesome is that he moved his mouth like he was trying to speak. (the nurse agreed so I can say this with confidence. Although I suspect he was trying to ask why I was wearing purple eyeliner. (But YEA!)

These awesome nurses tell me it is like coming out of a fog because he is so heavily sedated. It really is a double edged sword because I love seeing him awake and seeing movement but it is so very hard to think how confused and scared he must be waking up. He keeps trying to move his arms and legs but he is being held down and I am sure all the tubes around his neck and in his throat isn’t exactly pleasant. I have to keep reminding myself that these hard times are all part of the healing process and are actually positive. I just stroke his head and tell him over and over how much we love him, how proud we are of him, that he is safe, and how many people are praying for him. I can only hope and pray that it gives him comfort.

Each time a sedation vacation takes place (2x a day) they want to try to extend the time to allow his body to adjust and the goal is to have him be awake but relaxed. Our new “command” goal is to have him give the thumbs up. The ole’ hitchhikers sign if you will. When that happens I am told that’s a big positive sign from a neurological standpoint. ** do not pick up random people on the road with their thumbs up. It means something completely different. Just a little F.Y.I.

Right now our little “hump” is getting his blood clotting stabilized. Based on Tyler’s blood levels and what happened to ECMO1 the doctors suspect that the cause could be something in his blood that is not compatible with the blood thinner drug they are using. It is like a puzzle in that each piece much match or the drug can’t work correctly. The doctor has consulted with a colleague at Chapel Hill who recently came from Michigan which I am told, is the “Hub” of the ECMO machine world. There is a test that they are running but it is expensive, has to be sent out, and will not be back until Wednesday. Rather than wait till Wednesday both Chapel Hill, Michigan and our doctors are leaning towards it being an issue with Tyler’s super power clotting ability and they are slowing beginning to make adjustments.

This whole hospital has really taken a special interest in Tyler and it seems that everyone is keeping tabs on his condition. One of the nurse administrators came today to check on Tyler and I found out that her husband was one of the flight nurses that brought him in. By the time she left my purple eyeliner was gone. Someone needs to make an “Ugly Cry” line of eye makeup. Just sayin’

So as we stand right now, Tyler is still on life support, but showing signs of improvement. He has a long long road ahead but please keep those prayers coming.I can assure you each day and want to encourage you all that they are working and that your efforts are not going to waste. Some of you may not know that Tyler coaches Little League Baseball which he has a passion for. This year alone he has coached three teams: Spring ball, All Stars and an Invitational team. His All Star team made it to 2nd place in our division of the state which is quite an accomplishment. He adores those boys and they really look up to him as a positive roll model. We have been watching the Little League World series together and before he went on vacation I told the kids that next year we were going to Williamsport, PA to watch some games . He said “Mom, we don’t’ need to go next year because my boys are 10 now. In two years they will be 12 and we are going to the World Series then.” That’s my boy!

So, until tomorrow. Keep praying and keep those prayer chains going

Thumbs up!

Love,

Team Tyler.

13 thoughts on “Sunday

  1. April Sayler - August 30, 2015

    I need to meet you Michelle. you seem fun and I gotta see your eyeliner collection! 😉 love the updates.

  2. Tiffany Powers - August 31, 2015

    Thinking of you all. As a pediatric ICU nurse at St Mary’s in Richmond (I took care of Emily after back
    surgery) I understand your fears and have seen the amazing resilience young patients have in overcoming these battles. Even though my son was a 10 yr old on the national teams he still knows Tyler, who is a role model to many, including my 13 yr old son who umpires. Thoughts and prayers are with you all.

  3. Michelle's Dad and mom - August 31, 2015

    Schuyler and his family are our heroes. I didnot get to meet all but they are the greatest. Michelle and Trey have been wonderful {Michelle gets this from me} and brave. Trey is the best son-inlaw and the greatest Dad to Tyler and Emily[he does have a few little faults but that ok]. Thanks to all the prayers and support for Tyler from everyone.

  4. Friend Connie Norwood - August 31, 2015

    Praying for this precious boy…I know for a fact God has sent angels to surround Tyler and God’s hand is
    cradling him right now.

  5. Johnni Weingart - August 31, 2015

    Lots of prayer warriors praying for continued Good Reports! Keeping all lifted in pray for strength courage wisdom and healing! Jeremiah 29:11, for I know the plans I have for Tyler, says the LORD. They are plans for good and not for disaster, to give you a future and a hope.

  6. Claire Adinaro - August 31, 2015

    Hi Michelle. I am your Aunt Barbara’s friend in Richmond. I met you when she was visiting last and we had lunch at that little Mexican place. I just wanted to let you know that I am so sorry your family and Tyler is going thru this and I am praying for Tyler and for you. Please let me know if there is anything I can do for you here on the home-front.

  7. Connie - August 31, 2015

    I’m a friend of Schuyler’s Aunt, and have known the Sewell family for more than 20 years. I also happen to hold Bald Head very close to my heart as I have been going there with my family for years. While I would never in a million years want a tragedy like this to affect anyone, I’m so grateful that the Sewells were there and that BHI has the amazing EMS team that it does. I do not know Tyler or your family, but have been following his progress through Natalie’s updates and now here. I think of and pray for you all every day. Tyler sounds like an amazing young man, and I look forward to hearing about all of his baseball coaching success in the years to come as I know that, with his strength and the support of all of his loved ones, he is going to pull through this.
    Sending much love, strength and support!

  8. Denise Heer & Jimmy Butler - August 31, 2015

    Jimmy – one of the D5 TLL American boys lucky enough to have had Tyler as coach in July -and i are praying daily for Coach T. Sending love n support.

  9. Natalie Reddell - August 31, 2015

    Trey and Michelle, sending virtual hugs and donuts this morning. Love y’all. Thumbs Up Day! Woo hoo! Puttin on my purple eyeliner right now.

  10. Beth Boyd - August 31, 2015

    My son, Connor, was on Tyler’s All Star team and those boys truly adore and look up to him! I could not ask for a better role model for my son. Thanks for the updates, we enjoy hearing about the positive steps he is making. Our entire family is sending healthy thoughts and prayers your way.

  11. Meghann Wyatt - August 31, 2015

    Tyler helps to coach my son’s (Noah) little league team and I must say, we all absolutely adore him. He is such a great kid and we are praying for his recovery!! Glad to hear that it seems like things are moving in a positive direction!

  12. Juanita Flener Hamlin - August 31, 2015

    Heard it direct from a friend a few years ago, even in the drug induced coma, he heard what was being said. He heard some staff say that they didn’t think he would make it (but he did) and had trach removed later and had a passy put in so he could talk before it had been removed. It was a process. I met him in this condition when he was paralyzed in a car accident and I read about it and drove from NC to Richmond VA to pray over him. We began a three year friendship that was two to three times a week for much of that after they moved him to Norfolk VA to rehab. So while it may seem he does not hear when under, please bear it in mind. Aaron told me things I said later word for word. Glad I was positive. I am nearly sixty, Michelle, but I have purple eyeliner and while I only wear it when I feel sassy, I plan to wear it for team Tyler for show of support. xo

  13. Natalie Reddell - August 31, 2015

    Michelle, you are a Rock! Thank you for your updates. My parents have the contact info for the man who
    helped with CPR and the women who called 911. They gave them the info on this site so they can follow
    Tyler’s progress. I will text you their info. Also, I contacted the lovely officer in the ambulance, Julie Goss, to thank her and she is thrilled about the site and passing it on to the rest of the rescue team. She said everyone is praying for Tyler and you! Love you and miss you. Also, am working non-stop on solving the tear-proof purple eyeliner dilemma! I’ll keep you posted. Hugs.

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